How many things at once can go wrong?

I am going to have a bit of a whine here so if you dont want to hear a grizzle, stop reading!
I am over Dr's tests & new things going wrong.
In the last few weeks I have had the optical neuritis so had to see an opthomologist who was an ##@@&& & didnt help, then went to the hospital & saw the registrar neuro who organised the drip for 3 days. Ok, that got me over that hurdle, the rest of ms symptoms had kicked in with weakness etc. have seen neuro since & he said I have recuperated ok.
Bladder & bowel both misbehaving. Seen gastroenterologist many times & now on 2 lots of laxatives at least 2 times a day (1 I wont take if going out as never know when/if its going to work), last visit - still constipated so add enema to it. YUCK. This one is a squeeze it the liquid in & supposed to work in 30 mins - NOT. 12 hours later & nothing except severe abdo pain right round to the hip. Tried it 3 times incase it just needed to break through or something & it got worse so not using that. Have to keep a diary of both bladder & bowel & accidents etc so that is a challenge.
Have seen a continence nurse & physio & they have given me some hints etc. Then saw urology physician & have to have urodynamics tests done on April 1. (fun - not). Hope to get some answers at least. waiting on collarectomy/surgical appt for bowels. In the process found I have duo (whatever) hernia & another in sternum (middle) & probably another in old appendix scar.
I have diverticular (bowel)disease so of course this is letting me know with a lot of abdo pain.
Now got a virus which has meant I have croaky voice, coughing/barking & cant sleep for 10 days. On 2nd set of antibiotics & no joy yet. Temperature control is even worse with this. dr's cant find what is causing it as so far have stopped it becoming a chest infection by using ventolin, nebuliser, cough medicine, lem sip tablets etc. Asthma is crazy because of it esp early hours of the morning when I would like to sleep.
Just to add to these my left foot has been sore underneath for a few days but now got to the point when I cant walk normally on it. It is basically in the middle of the underneath & just above the heel part that it is swollen, red & very tender. If I make the mistake of putting my foot on the floor normally it brings tears to the eyes so have to walk either on toes or heel which wont be doing a lot for balance etc. Showed the gp today & he just said "your feet are too complicated for me" so need to see a foot person. Take pain killers & stay off it. Have podiatrist appt in 2 weeks but will I be able to wait till then???
From use of cortisone my legs are now covered in black/blue bruises & the skin then goes yellow, now starting on arms as well. Dr's just say its cortisone use thats done that so dont worry. Great look with shorts or sundress LOL. Poor David gets looked at like he has beaten me & he is a gentle soul.
Ok now I have to try to work out what am I going to follow up on first - asthma, virus/cough etc, foot that is hurting & could get worse if ignored, bladder/bowel or just book myself into the funny farm??? Last sounds tempting as then maybe someone will look at everything all together.
I am getting very fed up with it all & pateince for complainers with 1 issue (not msers but Mum
) so want to crawl into a hole.
Thanks for reading, needed to vent. I know others have worse going on I just feel like bing pulled too many ways at once.
- pennysue's blog
- Login or register to post comments
Disclaimer please read!
Disclaimer please read!
Please Note: Any advice given on OzMS must not be taken as medical advice, it's merely advice given by members from their own experiences of living with Multiple Sclerosis. Always check with your GP or Neurologist or other medical professionals, it's the smart thing to do and only logical! If you have something to contribute please do so, everybody has something to offer.


Comments
You poor thing, it never
You poor thing, it never rains but pours hey!!! I dont know how you manage to stay sane, I think I would have lost the plot!!
Hope they can get to the bottom of your issues soon and get you some relief, till then, stay strong.
Kristy
Life is like a box of chocolates.... never know what your going to get
sorry to hear this
Hi Sue,
Gee somebody give you a break! Vent away! I wish I could offer more than feeling for you and hoping you can sort out the issues, although in what order I don't know.
Take care,
Helen.
Sorry to read that you're
Sorry to read that you're going through a rough time again Sue.
By the description of your sorefoot, I was concerned that you might have a clot (DVT) until you said your doctor had checked it. Hopefully the podiatrist will get that pain under control for you.
Feel better soon.
I know what you are going
I know what you are going through. I seem to get something new happening to me every day. I keep wondering when it's going to stop or even if it is going to stop.
Hugs from me too
Ya poor thing. Seems to be never ending for you so heaps of hugs from me and
to MS.
Take care,
Shaz
I WISH I WAS A GLOW WORM. A GLOW WORM'S NEVER GLUM. COS HOW CAN YOU BE GRUMPY WHEN THE SUN SHINES OUT YOUR BUM.
Sending you Hugs
Hi Sue
So sorry that it seems to be one thing after the other. I too have reach the end of my tolerance when I here others (yes my mum) complain about things that can easily be fixed.
Sending you gentle hugs and hope you get a break from it soon...
Smile, It Confuses People.....
Thanks all
Thanks for reading & your responses too.
Looks like I have another issue looking - centrelink are doing another audit on our wages etc & saying that I might be earning enough to not need the pension anymore. Like my 29 hours a week is that much & I struggle. I would not manage without the pension discounts as train fare would double & we would lose so much other stuff it would be a nightmare, especially for medical care. They are going to request figures from our workplaces & go from there. Makes me really wonder if I should just give up work but I am not really ready to do that yet.
Thanks all
Breathing in, breathing out, I return to my own blessed center.
I am ready to receive miracles!
Penny Sue, do you have a car?
Penny Sue, do you have a car? If so, apply for mobility allowance. You get a health care card at the same time.
Cheers,
Jodi.
"Don’t judge each day by the harvest you reap, but by the seeds you plant" Robert Louis Stevenson.
& theres more
Yes I do have a car & get the mobility allowance. That was actually the 1st one I got. Thanks for asking.
Apparently its not my foot that is the problem its my legs, they have cellulitis on the front of both & it is referred through to the feet & she said I have flat feet after looking at my left foot then when compared with right said "thats unusual only 1 flat foot". Could it have been the other one is swollen??? She didnt give me antibiotics but sent me for a chest xray which I will get tomorroe & then see her in afternoon.
My eyes are all sore & watery but I think this is more from the virus so not worrying. I was hot & sweaty but still only 37' so no temp which is usual for me. Tried to tell her I dont get a temp very often & she said I am a puzzle.
Breathing in, breathing out, I return to my own blessed center.
I am ready to receive miracles!
things all at once
I feel for you hon. Not much I can say as I sit tingling away and itching like mad. I start a job tomorrow and the stress is exacerbating my symptoms- AND I've got to go back to the dentists and pay $5000 for the privilege.
But hearing what you are going through makes me feel like a wuss for grumbling!