Hello everyone!

Julie's picture
Submitted by Julie on Mon, 19/07/2010 - 13:35

Hi everybody
Jellyjam is still around.
To be honest (can I say), I've had trouble getting around the new website.
Health is okay, but am getting sick of being treated like a hypochondriac all the time. HELLO, I HAVE MS!!!! I do have issues with cutting my son's fingernails...because he is a moving target... It isn't because I'm lazy or can't be bothered (or both).
Still have the usual problems. Issues with hands, stiffness, lightheadeness, strange unexplained sensations, fatigue.... Oh, sometimes difficulty with swallowing and unexplained pains in jaw (not root canal thank goodnesss). So, yes, progressing.
Loved the vid someone posted "the show must go on". I posted it on my Facebook for a time, just so that people can see some of the invisible effects.
Some days it all gets to much...
Julie

‹ Neuralgia or sick tooth MS leaves me breathless ›

Comments

johnboy's picture

Hi Julie glad to hear your

Submitted by johnboy on Mon, 19/07/2010 - 13:38.

Hi Julie glad to hear your still on planet earth. Steve

"...(I) will run and not be weary, walk and not be faint." Isaiah 40:28

AmberA's picture

Hi Julie

Submitted by AmberA on Mon, 19/07/2010 - 14:52.

Hi Julie

Good to hear your still around, I understand what you mean by people only seeing the outside display we put out there. Also understand the lack of understanding you get at times when you don't want to cut your sons nails and things like that.

I sometimes forget to explain to my husband why to some things I say, no can you do it please. Cutting my sons nails is one of them, as well as bathing him (ónce I kneel down on the floor hard to get back up)You have reminded me with your post, to explain more so he doesn't think I just don't want too.

When I have people say to me 'oh your looking well' with that surprised tone they give, I nod say thank you and change subject. One day if they ask 'How are you feeling?' I will give them a bigger picture.

Stay smiling and enjoying your mummy time and play group.

Ambs Smile

Smile, It Confuses People..... Smile

Julie's picture

Hi Ambs

Submitted by Julie on Mon, 26/07/2010 - 12:09.

Thanks for your post. It is indeed a challenge being a mummy and having MS. One thing I realised is that I've rested in the past, but now I can't. That's the hardest thing.
My partner is in some denial about my MS, but as he says, that is his coping mechnanism.
I am definitely NOT lazy, but there are some things I have to renegotiate.
Julie

Julie's picture

Hi Steve

Submitted by Julie on Mon, 26/07/2010 - 12:10.

Hi there. Yep still going strongish.
How are you? I hope you are doing okay.
Julie Party

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Please Note: Any advice given on OzMS must not be taken as medical advice, it's merely advice given by members from their own experiences of living with Multiple Sclerosis. Always check with your GP or Neurologist or other medical professionals, it's the smart thing to do and only logical! If you have something to contribute please do so, everybody has something to offer.