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Australian Multiple Sclerosis Information

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Let's discuss Groups!

Darin's picture

The site is pretty much configured with the modules that made it somewhat similar to the old site, of course things will probably change nothing is set in stone, but for now it has the main things that were needed. I am going to create topics possibly one a week or one every two weeks like this one that discuss certain features of the site and I really need people to reply and participate.

electric shocks

carrieanne's picture
Posted in

Shock
I have had a return of the tingling sensations over the past 4 weeks, and three times in the last fortnight it felt as though electric shocks were hitting the sole and heel of my left foot. The only way to reduce the sensation was to hit my foot on the place where it was being zapped. I have also had really itchy skin, though that has now subsided. Is this an exacerbation?

human trials begin for BIIB033

tawney008's picture

Hi All,

Has anyone been diagnosed with Fibromyalgia on top of MS?

KarenH's picture

Hi all,

Just wondering whether anyone has been diagnosed with Fibromyalgia.

I have just been advised that I have this on top of MS and I would like to find out what others are taking medication or supplement wise etc; and whether they have found any benefit from it.

Most of the things they wanted to give me I can't take as been there, done that with very bad reactions!!

Ruby's picture

unable to meetup in Canberra

Hi Ctefeh and Sarah,wanted to let you both know that I am unable to meet up with both of you as I won't be staying over in Canberra when I have my Dr's appointment,if I need to go back and stay at my brother's I will let you both know.I am disappointed I won't be able to meet both of you,Virginia

George Jelinek Interview Life and MS

Helen's picture

George Jelinek recently gave a radio interview covering his life and MS issues. It is an interesting interview which gives you a positive insight into the man himself. I really enjoyed it.

Here is a link to the radio program:

http://www.radiooutthere.com/blog/audio/ROT0910.mp3

Helen.

Darin's picture

Lifemoves - a peer support program for people with MS

Letter of invitation for Lifemoves (a peer support program) for MS

The rehabilitation department at the Royal Melbourne Hospital is working on a project that looks at the effectiveness of a peer support program called LifeMoves.

Vitamin D - study finds immune system can't fight off infections without it

Helen's picture

Vitamin D has been found to be needed for T cells to work properly. Vitamin D is crucial to activating our immune defences and that without sufficient intake of the vitamin, the killer cells of the immune system – T cells – will not be able to react to and fight off serious infections in the body.

This is an exciting finding!

Here is the link:

Insipirational Aussie Ladies Living with MS

Helen's picture

This is an excellent short video clip with three Aussie ladies speaking about living with MS. They all have great attitudes, get on with life, they are lucky to have supportive partners and employers, and that sure makes things easier. Lucky ladies!

Enjoy this clip, I certainly did!

Helen.

My Vitamin D level

Helen's picture

Da da da, drum roll, Jan 2009 81 nmols, March 2010 140 nmols!!!
Woo hoo!
Shows that supplementation does work. I'm going to stay on 5000 iu maintenance from now on.
All bloods were great, cholesterol down, blood fat down - no issues at all, perfectly healthy, until I stand up and start to wobble Smile

Helen.

Disclaimer please read!

Disclaimer please read!

Please Note: Any advice given on OzMS must not be taken as medical advice, it's merely advice given by members from their own experiences of living with Multiple Sclerosis. Always check with your GP or Neurologist or other medical professionals, it's the smart thing to do and only logical! If you have something to contribute please do so, everybody has something to offer.

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